Autism and Development Disorders

Autism Highway 

Started by a woman whose son was diagnosed with autism, Autism Highway is both informative and fun. The website is easy to navigate and it provides an extensive list of autism-related events and specialists. In addition, Autism Highway includes interactive games for kids.  

Autism Navigator 

Autism Navigator is a collection of web-based tools and courses developed to bridge the gap between science and community practice. They have integrated the most current research into an interactive web platform with video to illustrate effective evidence-based practice. The video clips come from the rich library of video from federally funded research projects at the Autism Institute at Florida State University. 

Autism Research Institute 

The Autism Research Institute focuses on researching the causes of autism, as well as developing safe and effective treatments for those currently affected by the disorder. 

Autism Society 

The Autism Society is a grassroots autism organization working to increase public awareness about the day-to-day issues about people across the spectrum, advocate for appropriate services for individuals of every age, and provide the latest information regarding treatment, education, research, and advocacy.  

Autism Speaks 

Autism Speaks is an autism awareness, science, and advocacy organization. The website provides a comprehensive resource guide for all states. The 100 Day Kit for Newly Diagnosed Families of Young Children was created specifically for  

families of children ages 4 and under. Visit Autism Speaks to see their comprehensive listing of autism websites for families. 

My Autism Team 

A free social network for parents of kids with autism. With over 30,000 parents registered on the site, you can find parents just like you based on where you live, the age of your child, your child’s sub-diagnosis and developmental needs, and gender. Parents share tips, support, and photos, as well as ask and answer each others’ questions. In addition, there is a searchable provider directory of over 35,000 autism specialists and autism-friendly providers constantly updated by parents on the site. MyAutismTeam is the official social network and resource guide for Autism Speaks. 

National Professional Development Center on Autism Spectrum Disorders 

The National Professional Development Center on Autism Spectrum Disorder (NPDC) has worked to develop free professional resources for teachers, therapists, and technical assistance providers who work with individuals with ASD. Resources include detailed information on how to plan, implement, and monitor specific evidence-based practices. 

Organization for Autism Research 

OAR’s mission is to apply research to the challenges of autism. The organization uses science to address the social, educational, and treatment concerns of self-advocates, parents, autism professionals, and caregivers. In addition to funding research, OAR disseminates new and useful information to as many members of the autism community as possible and directs all research and programs initiatives toward enhancing the quality of life for individuals with autism. 

Sesame Street and Autism: See Amazing in All Children  

Sesame Workshop created Sesame Street and Autism: See Amazing in All Children, a nationwide initiative aimed at communities with children ages 2 to 5. Developed with input from parents, people who serve the autism community, and people with autism, See Amazing in All Children offers families ways to overcome common challenges and simplify everyday activities. The project also fosters an affirming narrative around autism for all families and kids.  

The Asperger/Autism Network (AANE) provides individuals, families, and professionals with information, education, community, support, and advocacy 

The Boone Fetter Clinic is part of the Autism Speaks Autism Treatment Network and DBPNet. These affiliations enable our team to participate in new and innovative autism research projects. Because of this research, we can offer your child the most promising new therapies. 

Balance and Vestibular Disorders

American Tinnitus Association 

Boys Town National Research Hospital 

Hearing and Balance 

Discover how ENT-related conditions are connected to various areas of the ear, nose, and throat. 

Mind Over Meniere’s 

The American Hearing Research Foundation serves two vital roles: to fund significant research in hearing and balance disorders, and to help educate the public about hearing loss and balance disorders related to the inner ear. 

The Ménière’s Society is the only registered charity in the UK dedicated solely to supporting people affected by dizziness and balance problems caused by vestibular disorders.  

VEDA – Vestibular Disorder Association 

VEDA – Vestibular Disorder Association | FB support groups 

Educational and Disability Resources

American Speech-Language-Hearing Association (ASHA) 

ASHA is the national professional, scientific, and credentialing association for audiologists; speech-language pathologists; speech, language, and hearing scientists; audiology and speech-language pathology support personnel; and students. On the ASHA website you can find an overview of Autism Spectrum Disorder as well as specific information about ASD for speech-language pathologists. 

California Department of Developmental Services 

California Department of Special Education 

Center for Parent Information and Resources (CPIR) 

The Center for Parent Information and Resources (CPIR) serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs). The Parent Training and Information Centers (PTI) found in every state are a rich source of information and training tailored for parents, including parents whose primary language is not English or themselves have special training needs. In addition, Community Parent Resource Centers (CPRC) throughout the country serve targeted, underserved communities. To find the PTI or CPRC that serves your community, go to the Center on Parent Information and Resources. 

Early Childhood Technical Assistance Center (ECTA) 

The Early Childhood Technical Assistance Center (ECTA), located at the University of North Carolina at Chapel Hill, supports the strengthening of state and local service systems to ensure that children with disabilities and their families receive high-quality, evidence-based, culturally appropriate, and family-centered support and services. 

IRIS Center 

The IRIS Center, funded by the Office of Special Education Programs and based at Vanderbilt University and Claremont Graduate University, creates and disseminates resources about evidence-based instructional and intervention practices for preservice preparation and professional development programs. See the Autism Spectrum Disorder self-guided training modules for teachers. 

The Center on Technology and Disability.  The Center is designed to increase the capacity of families and providers to advocate for, acquire, and implement effective assistive and instructional technology (AT/IT) practices, devices, and services. Research-based technologies have great potential to help infants, toddlers, children, and youth with disabilities participate fully in daily routines; have increased access to the general educational curriculum; improve their functional outcomes and educational results; and meet college- and career-ready standards. 

The National Association of Special Education Teachers (NASET) 

NASET is a national membership organization dedicated to supporting teachers in the field of special education. NASET offers a rich library of information on a wide range of ASD topics, as well as the publication, Autism Spectrum Disorders Series. 

Federal agencies and federally funded organizations 

The U.S. Department of Education 

When your child enters public school, he or she has rights under federal and state laws. The U.S. Department of Education has information about federal laws and state laws. The Department’s Office of Special Education Programs (OSEP) supports projects that provide information and technical assistance to families of infants, toddlers, children and youth with disabilities. Families can also find a wealth of information about the Individuals with Disabilities Education Act (IDEA) at OSEP’s IDEA website website contains the full text of IDEA and the regulations, as well as guidance documents and a wide range of other resources. 

Wrightslaw Special Education Law and Advocacy 

A great site for accurate, reliable information about special education law, education law, and advocacy for children with disabilities. Early intervention is invaluable because it links parents to services in the community, but it can be hard to find services without a long waiting list. Families can search on their own for providers using the Wrightslaw Yellow Pages for Kids With Disabilities. 

Finding Mental Health Support

Anxiety Disorders Association of America 

California Association of Marriage & Family Therapists 

CAMFT and Counseling California provide a broad search tool for finding a therapist, including insurance type. 

California Department of Mental Health Search for Providers 

Deaf Counseling Center 

Deaf Therapists treating Deaf Patients 

Department of Health Care Services in California 

Adult and children’s mental health services 

Didi Hirsch Mental Health Services has provided free mental health, substance use disorder and suicide prevention services since 1942. Dedicated to serving communities where stigma or poverty limits access, Didi Hirsch helps more than 150,000 children and adults from 10 locations and 100 schools throughout Los Angeles and Orange counties each year. 

Family Pact Provider Service 

General California Mental Health Connections by County 

Grief and loss support within Los Angeles County 


Meditation and Mindfulness Membership 

LA County Mental Health 

Mental Health America 

Mental Health America (MHA)’s work is driven by its commitment to promote mental health as a critical part of overall wellness, including prevention services for all; early identification and intervention for those at risk; integrated care, services, and supports for those who need them; with recovery as the goal. 

Psychology Today Provider List 

Referral list via Psychology Today for therapists that accept Medi-Cal in California  

Psychology Today Provider List, select your own criteria 

The National Council for Mental Wellbeing 

Certified Community Behavioral Health Clinics locator to support mental health, search by state.  Designed to provide a comprehensive range of mental health and substance use disorder services to vulnerable individuals.  Medicaid providers. 

General Vestibular Support Groups: 

These are Facebook support groups directed towards any kind of vestibular dysfunction. 

National Crisis Resources

American Foundation of Suicide Prevention 

800-273-8255 or text “TALK” to 741741 

Call 211 

If you need assistance locating long-term mental health resources, talking through a problem, or exploring mental health treatment options, call 211 to speak with a live person who can help.  

Lifeline Crisis Chat 

Ability to chat online with crisis centers across the United States. 

Mental Health America Crisis Line 

1-800-273-8255 or text “HOME” to 741741 

Connects callers with trained crisis volunteers who provide confidential support, advice and referrals if needed.  Another is Mental Health First Aid, for children and adolescents.  Text  “MHFA” to 741741. 

National Suicide Prevention Lifeline (24/7) 

1-800-273-TALK (1-800-273-8255) 

Crisis hotline for individuals or families interested in mental health referrals, not just suicide. 

SAMHSA’s National Helpline (Substance Abuse and Mental Health Services Administration) 

1-800-662-HELP (4357). SAMHSA’s National Helpline is a free, confidential, 24/7, 365-day-a-year treatment referral and information service (in English and Spanish) for individuals and families facing mental and/or substance use disorders. 

TeenLine (Cedars Sinai Medical Center) 

Do you need help working something out? Do you want to talk to someone who understands, like another teen? We’re here to help! Call (310) 855-HOPE or (800) TLC-TEEN (nationwide toll- 

free) from 6pm to 10pm PST.  Text “TEEN” to 839863 between 6:00pm-9:00pm PST to speak with one of our teens (Text STOP to opt out). 

The Trevor Project 

Call 866-488-7386 or text “START” to 678678 

Trained counselors, 24/7, to support youth in crisis, specialized in LGBTQI community. 

The Trans Lifeline 

Call 1-877-565-8860 

Neuro Specific Resources

Acoustic Neuroma Association

Support groups, community support, caregiver support, education. 

American Association of Neurological Surgeons 

Developed by neurosurgeons, this resource provides patients and their families trustworthy information on a wide range of neurosurgical conditions and diseases. Learn about disease and injury risk factors, symptoms, diagnosis and both surgical and nonsurgical treatment options. 

American Brain Tumor Association 

The mission of the American Brain Tumor Association is to advance the understanding and treatment of brain tumors with the goals of improving, extending and, ultimately, saving the lives of those impacted by a brain tumor diagnosis. 



American Cancer Society 



American Childhood Cancer Organization 



American Psychosocial Oncology Society 



American Society of Clinical Oncology 

571-483-1780, 888-651-3038 


Association of Oncology Social Work 



Bear Necessities Pediatric Cancer Foundation 




Brains for the Cure 

A program built for patients and caregivers. It is an online navigator to help them understand, manage, and cope with all the twists and turns of a brain tumor diagnosis. It includes timely articles from the scientific and personal perspective, more than 200 videos of physicians, caregivers, and patients sharing their stories and resources developed to ease some of the journey through treatment. Brains for the Cure connects the brain tumor community to let those fighting know they are not alone. 

Brain Tumor Network 

The Brain Tumor Network (BTN) is a navigation resource for adult patients and caregivers in the United States seeking information about brain tumor treatment options including clinical trials. This unbiased resource is provided at no cost to patients, caregivers, or healthcare professionals. 




Cancer Research Institute 



Cancer Trials Support Unit 



Center for Cancer Research (NCI at NIH) 




Center for Mind-Body Medicine 



Children’s Oncology Group 


Collaborative Ependymoma Research Network 

The CERN Foundation is committed to improving the care and outcome of people with ependymoma through community support and research efforts. The CERN website is dedicated to informing patients and caregivers about treatment, diagnosis, clinical trials, symptom management, and recurrence. It is a valuable resource for those affected by ependymoma, including patient stories. 

CureSearch for Children’s Cancer 


End Brain Cancer 

The EndBrainCancer Initiative is enhancing patient outcomes by expanding FDA-approved treatment modalities and fueling research in the pharma/bio/life sciences, device and diagnostic industries and by closing the existing gap from initial diagnosis to immediate and expanded access to specialists, researchers, advanced and innovative treatments, clinical trials and critical care with the ultimate goal of improving patient outcomes through updating and improving WHO and NCCN Guidelines and clinical practices related to standard of care for brain cancer patients. 

Epidermoid Brain Tumor Society 

The mission of Epidermoid Brain Tumor Society (EBTS) is to inform, educate, support and fund research for those affected by the epidermoid brain tumor. EBTS Facebook support group


Family Caregiver Alliance 



Native American Cancer Research 



National Organization for Rare Disorders 



Neuroendocrine Tumor Research Foundation 



Neurofibromatosis California  

Psychosocial Support (including support groups and peer matching) 

Neurofibromatosis Network 

Neuroscience for Kids:  Dr. Chudler’s Primer Identifying Cranial Nerves 

Chart and activities to learn more about cranial nerves. 

Office of Minority Health 



Pediatric Brain Tumor Foundation 



Pituitary Network Association 

The PNA is an international non-profit organization for patients with pituitary tumors and disorders, their families, loved ones, and the physicians and health care providers who treat them. 

Rare Tumors 

Resources, support and referrals. NCI-CONNECT Rare Brain and Spine Tumor Network.   

Support for People With Oral and Head and Neck Cancer 



The Brain Aneurysm Foundation 

Education, support groups and resources for patients and caregivers. 

The National Children’s Cancer Society 


Non-Profit Organizations Providing Support for Other Hearing and Vestibular (Balance) Challenges
AG Bell 

Here at AG Bell we are working globally to ensure that people who are deaf and hard of hearing can hear and speak. We are here to provide support, information, resources and more to help guide you on your journey. 

American Annals of the Deaf 

Described and Captioned Media Program 

Families and educators who have at least one student with a disability can register for free membership and access thousands of accessible, educational videos. 

Teachers can 1) share videos using apps like Zoom, 2) create Student Accounts to assign videos, or 3) embed videos in LMS like Google Classroom. 

Hearing First – Parent & Professional Support for LSL 

Listening and Spoken Language (LSL) has opened up a world of possibility for children who are deaf or hard of hearing. With LSL intervention and the right hearing devices, children with hearing loss are listening, talking, learning, and reading just like their hearing friends and siblings. 

National Institute on Deafness and Other Communication Disorders 

National Organization for Rare Disorders – NORD 

Oxford Academic 

WHO Deafness and Hearing Loss 

Online Resources for Support and Information

A.G. Bell – Newly Diagnosed Parent Hotline 

Alexander Graham Bell Association for the Deaf and Hard of Hearing  

Here at AG Bell we are working globally to ensure that people who are deaf and hard of hearing can hear and speak. We are here to provide support, information, resources and more to help guide you on your journey. 

American Cochlear Implant Alliance 

The mission of the American Cochlear Implant (ACI) Alliance Foundation is to advance access to the gift of hearing provided by cochlear implantation through research, advocacy and awareness. 

American Pregnancy Association 

American Society for Deaf Children 

Since 1967, ASDC has been supporting parents of children who are deaf and hard of hearing. We believe that deafness is not a disability, but language deprivation is. That’s why it’s our mission to ensure that every deaf child can learn sign language from the very start.   


American Speech-Language-Hearing Association  

Parenting a child who is deaf or hard of hearing 

Baby’s First Test  

California Hands and Voices 

Center for Disease Control – Cytomegalovirus 

CMV Section 

Cerebral Palsy  

Cerebral Palsy Group 

CMV Canada 

College Guide for Deaf and Hard of Hearing Students 

Deaf and Advocacy Services (Northern California) 

Deaf Education – part of Hands and Voices 

Disability Scoop 

Sign up for Disability Scoop’s e-mail news to receive the most current updates on developmental disabilities. Disability Scoop’s experts have been cited by multiple online news sites. 

EBS Healthcare  

EBS Healthcare is a unique company that began as a non-profit organization founded by special education directors more than 30 years ago. We have remained the global leader of birth to 21-year-old programs and the largest provider of services for the pediatric population. EBS is dedicated to empowering clinicians to become leaders in their fields, while providing the highest-quality services for families and communities around the world. Our mission is to make a difference in every life we touch every day.  

Ear Peace Save Your Hearing Foundation 

Ear Peace Foundation is an educational nonprofit dedicated to raising awareness among young people about the epidemic of Noise-induced Hearing Loss (NIHL) and its simple prevention. One in five U.S. teenagers has permanent hearing damage by the age of 19, most due to recreational noise exposure. Ear Peace Foundation works collaboratively with families, educators, and other professionals to provide information and free curriculum materials about NIHL and hearing safety including a 30-minute classroom lesson that can be presented in-person, virtually, or completely online.  

Educational Audiology Association 

Epilepsy Foundation 

Family Resource Centers Network of California  

Family Voices 


Family Voices of California is a statewide collaborative of parent-run centers working to ensure quality health care for children and youth with special health care needs. 

Greater Los Angeles Agency on Deafness, Inc. (GLAD) 

Provides support to help advance the life of deaf and hard of hearing individuals by empowering them with information, training and opportunities. 

Hands and Voices Foundation 

We are parents of ASL signers, cued speech users, parents of kids with cochlear implants or total communicators, we are people who have common interests connected through the community of deafness. Hands & Voices is a safe place to explore options, get unemotional support (although we can be emotional about it!), learn from one another and share what we have in common. We value diversity and honor the role of parents and family as the single greatest factor in raising a WASK:  W ell- A djusted S uccessful K id) 

Hands and Voices D/HH Parent Facebook Group 

Hearing First  

Every Day, Children with Hearing Loss are Learning to Listen, Talk, and Thrive.  Leaders in LSL training and parent support.   

Joint Commission on Infant Screening 

Hearing Health Foundation 

Hearing Loss Association of America 

Hearts for Hearing 

At Hearts for Hearing, we change the lives of children and adults through the attention we provide to identify each individual’s unique hearing needs, our innovative, evidence-based solutions, and our family-centered support. While some view hearing loss as a condition that separates people from their loved ones, we seek to restore hope and opportunities.  

Joint Committee on Infant Hearing  

The mission of the Joint Committee on Infant Hearing is to address issues that are important to the early identification, intervention and follow-up care of infants and your children with hearing loss.   

March of Dimes 

March of Dimes – Hearing Loss 

Minnesota Department of Human Services 


National Center on Deaf-Blindness 

National Center for Hearing Assessment & Management (NCHAM) 

National CMV Foundation 

National Congenital CMV Disease Registry 

Nemours KidsHealth 

Cleft Palate 


A service of the non-profit Organization of Teratology Information Specialists (OTIS), is the nation’s leading authority and most trusted source of evidence-based information on the safety of medications and other exposures during pregnancy and while breastfeeding. We specialize in answering questions about the safety/risk of exposures, such as medications, vaccines, chemicals, herbal products, substances of abuse, maternal health conditions and much more, during pregnancy or breastfeeding. Our no-cost information service is available to people who are pregnant and/or breastfeeding, their family members, health professionals, and the general public via chat, text, phone, and email in both English and Spanish. 


PMG Awareness Organization 

Regional Center of Orange County (California) 

Success for Children with Hearing Loss  

The Children’s Tumor Foundation’s mission is to drive research, expand knowledge, and advance care for the NF community. 

United Cerebral Palsy 

Usher Syndrome Coalition 

Zero to Three – Early connections last a lifetime 

Related Vendors for the Consumer

Advanced Bionics 

CapTel (Hamilton) 

Caption Call  

Cochlear Americas 


Cognitive impact of hearing loss 


Wireless services, recommendations and resources for disabled, veterans and elderly. 

Ear Technology Corporation 


Rather than creating a new device, HeardThat makes the hearing devices you already own work better, simply by using your smartphone.  



Oticon Medical  

Bone conduction, CI, hearing aids 




T-Mobile Accessibility 



Please let me know if you have a favorite website or mental health practitioner to share: or 213-770-2187 ext.105 

Thank you!! 

Doctor adjusting cochlear implant
Doctor discussing ear model with patient